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CHRONIC FATIGUE: MAKE YOUR BATTLE AS EASY AS POSSIBLE
Don’t label yourself. Hopkins urges that you keep yourself open to admitting that you may have something besides CFS. Many patients who thought they had CFS have recovered after being treated for everything from sleep disorders and sinus problems to hyperventilation. Depression is often mistaken for chronic fatigue syndrome, too. Dr. Manu, among others, reports that a high percentage of CFS patients respond favorably to antidepressants.
Beware the quacks. Any disease, especially one as mysterious as CFS, is bound to bring out the hustlers. “The way people treat CFS ranges from practices that make a lot of sense to practices that are a bit scary,” says Dr. Fukuda.
There’s a long list of megavitamins, minerals and natural supplements—everything from magnesium and zinc to garlic and black currant oil—that are rumored to relieve the symptoms of CFS. None of these have been proven to be of any value, according to a study conducted by the Harvard School of Public Health. The same goes for any number of specialized diets. The Harvard study analyzed the diets that five self-help books claimed would cure CFS, including several that eliminated yeast, sugar and carbohydrates. Again, no proof was found that any of these diets are effective. Worse, the study warned, such diets may actually be harmful because they’re nutritionally unbalanced.
Adopt a diet. Studies aside, many CFS patients have found special diets or vitamin regimens that seem to work for them. In fact, Pat Hopkins says, diets that eliminate sugars and caffeine are especially popular because people with fatigue have a tendency to overindulge in those substances, only to come crashing down again when the rush wears off.
Dr. Manu feels that, if nothing else, such diets can have therapeutic value. “There is no scientific evidence that these things work,” he says, “but there is a lot of anecdotal evidence. If there’s nothing harmful in the diet, I say go ahead. Patients need to feel they have some sense of control, that there’s something they can do.”
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